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[liberationtech] Ebola: A Big Data Disaster

Heather Leson heatherleson at gmail.com
Fri Mar 4 03:51:35 PST 2016


Thanks for this great work Sean.

The recommendations were spot on. Truly I was glad to see ilab Liberia as
part of the organizational input as I think local civic tech communities
increasingly play a role.

In addition, there should be more guidelines for tech companies and
researchers.  I would be keen to here your thoughts and recommendations in
the context of your report.

The Responsible Data Forum tackles some of these in general. But we will
see more and more requests for mobile data /CDRs in the future.

Heather


Heather Leson
heatherleson at gmail.com
Twitter: HeatherLeson
Blog: textontechs.com

On Wed, Mar 2, 2016 at 10:49 PM, Lina Srivastava <lina at linasrivastava.com>
wrote:

> Hi all --
>
> Is there a protocol to adding someone from off the list to a discussion
> thread here? This study is fascinating and I mentioned it to a friend who
> co-founded Flowminder, and I think he'd love to discuss.
>
> Lina
>
> On Wed, Mar 2, 2016 at 12:21 PM, Sean McDonald <
> seanmartinmcdonald at gmail.com> wrote:
>
>> I'm excited to present some new research: "Ebola: A Big Data Disaster
>> <http://cis-india.org/papers/ebola-a-big-data-disaster>," published by
>> the Center for Internet & Society (with support from the Media Democracy
>> Fund). It's a look at the way that technology was used during the Ebola
>> response - with a focus on Call Detail Records, the experimental nature of
>> data modeling in humanitarian response, and how that likely violates West
>> Africa's well-developed (but under-implemented) data laws.
>>
>> My hope is that it will kick off a larger discussion about the risks
>> (legal and operational) of digitizing humanitarian response - especially
>> when it involves the use of large scale, sensitive data like CDRs (all
>> anonymization and re-identification caveats apply). As practice stands,
>> international organizations are likely putting themselves and the people
>> they help at considerable risk, in violation of human rights law, data
>> protection law, local regulation, and potentially commercial property law
>> (among other theories of litigation).
>>
>> This case study focuses on Liberia, which didn't turn over CDR access -
>> but many of the same operational considerations and laws apply in Sierra
>> Leone and Guinea, where several mobile network operators did.
>>
>> I'd love any thoughts, connections to people working on these issues, or
>> critical feedback.
>>
>> Best,
>> Sean
>>
>> --
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>>
>
>
>
> --
>
> --
> Lina Srivastava
> --
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> www.linasrivastava.com
> www.regardinghumanity.org
> www.whoisdayanicristal.com
>
>
> --
> Liberationtech is public & archives are searchable on Google. Violations
> of list guidelines will get you moderated:
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